Evan Fasciano’s condition causes his skin to grow at ten times the normal rate, leaving him at risk of life-threatening infection. Evan, from Goshen, Connecticut, was born with Harlequin Ichthyosis, a genetic disorder that leaves him with scales across his entire body. Suffering from the severest form of the disease, Evan is at constant risk of infection – requiring him to have two baths a day so 33-year-old mom De De can scrub off the excess skin. According to Jo, his father: ” It is a condition that affects his skin and it makes very very thick and scaly.” Evan was diagnosed 2 days prior to birth, and his parents have never heard that he has Ichthyosis from the Doctor before he was born. It’s hard for them because they really don’t know what to expect and it was scary just hearing the information that a lot of babies might not survive.
Presently there is no cure for Harlequin Ichthyosis, but despite his condition Evan remains a lively, happy child, who is incredibly popular at school and loves to play with his younger brother Cenzo. – Barcroft TV
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